The Diagnosis
I follow a group online called the Down Syndrome Diagnosis Network, which exists to support families when they have received a Down syndrome diagnosis. While I have written extensively about Tessa’s...
View ArticleLesson #3: Amanda really did us a favor
Amanda is the Nurse Practitioner that delivered the preliminary diagnosis of Down syndrome to John and I. For a long time, I really struggled with her decision on how to tell us about Tessa. But in...
View ArticleLesson #23: There is an abundance of support
The first few hours days (?) after a diagnosis can be, quite frankly, isolating. Few really quite know exactly how to respond. Somehow, your family has become different and you really aren’t sure...
View ArticleReflections from Dad (on his daughter’s first birthday)
Today is THE day. And while I’ve spent the last year telling people the wrong date over and over, I’m sure I have it right this time. Tonight’s reflection comes from John. As I write this, he is...
View ArticleReflections from Ellie
More than me, more than John, Tessa adores Ellie. The bond that these two share is unlike any I have ever seen before. This morning, I stayed at home an extra 10 minutes so that I could see my girls...
View ArticleOn abandonment
We’ve all seen the latest story that is trending on Facebook… you know the one, the story of the father who is (allegedly) choosing to raise his son, diagnosed with Down syndrome at birth, in spite of...
View ArticleReady, set, go… Year 3
31 days of blogging for Down syndrome awareness month… on my iPhone. Yikes. We don’t have a working computer these days, but I’m determined y’all. Starting tomorrow, we’re covering 31 surprises about...
View Article
